Ellen and Teresa hosted a wonderful evening.

Long-time FIRST member, and a past president, Ellen C. teamed up with FIRST member Teresa

Jason H. and Tom C. applaud the hard work of their spouses.

H. to host a wonderful wine tasting event in North Carolina.  Ellen, who is affected with lamellar ichthyosis,  was president of FIRST from 1988 to 1992.  Teresa is the mother of 14-year-old Jelani who is affected with KID syndrome.

Ellen and Teresa cohosted the Triangle Skinsational Sip  wine tasting and silent auction which was held at the North Ridge Country Club in Raleigh, North Carolina. Over 80 people attended this wonderful event and they enjoyed several different high-end wines and nibbled on delicious hors d’oevres while also learning about ichthyosis.  Ellen's nephew, Sean, manned the coat check for the evening.  He then took the tips that he earned and donated them to FIRST!  What a generous act.

Ellen and Teresa hosted a beautiful event and raised great awareness for  ichthyosis at this, their first attempt at a grassroots fundraiser.  We walked them through each step of the fundraising process.  However, it was their eagerness, determination and creativity that made it such a huge success.

Sean Betts at the coat check FIRST Senior Ambassador Jennifer See met Richard & Lynette Sapienza Teresa with her friend Erica Frasier
Ellen and her brother, Bill Friends and family of Ellen and Teresa enjoyed the evening.


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