Jamberry Nail Wraps

Newest member of the FIRST Board of Directors Kimberly Cole is the proud mother of 3-year-old Harper, who is affected with erythrokeratoderma variabilis (EKV).  Kim has been very active in fundraising for FIRST since Harper’s birth, participating in bake sales and craft fairs to create awareness and raise funds.  Kim’s latest endeavor targeted Rare Disease Day.  Kim sold decorative nail wraps during the month of January to create excitement and offer participants a way to display their Rare Disease Day pride.  The wraps were decorated with logos and designs for Rare Disease Day and sold online, with a portion of the proceeds going to FIRST. The wraps continue to be available for sale to raise ichthyosis awareness anytime. Follow this link to purchase yours. Much gratitude to Kim for her work on this effort!

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