FIRST members coordinated fundraising events at ballparks across the country!

New York Mets

It was another great year for the annual FIRST Night Out with the New York Mets! The Benedetto family, whose son Marc is affected with lamellar ichthyosis and the Saccente family whose daughter Kylie Leigh is also affected with ichthyosis, gathered another large group of supporters to cheer on the Mets and raise awareness of ichthyosis at Citi Field on June 26. The Benedetto and Saccente families were honored with a New York Mets Spirit Award on the field before the start of the game. A big thank you to the Mets organization for working with FIRST to bring as much awareness to ichthyosis and the mission of FIRST as possible. Awareness was raised throughout the entire game including FIRST logos displayed on LED boards and an informational ichthyosis video, produced by FIRST, played throughout the entire arena.

Philadelphia Phillies

The Fahey family organized FIRST Night at the Phladelphia Phillies, where they took on the Cincinnati Reds on May 13.  Although the game was not victorius for the Phightin' Phils, the Fahey family enjoyed their time together and supporting FIRST.

Lakeshore Chinooks

FIRST Board member Kimberly Cole and her family and friends headed to the Lakeshore Chinooks on Friday, June 5, to raise awareness and funds for FIRST.  Kim has held many fundraisers for FIRST in honor of her daughter, Harper, who has erythrokeratoderma variabilis (EKV).  Thank you Cole family for continuing to raise awraeness of FIRST in your community.

Tampa Bay Rays

More than 40 people gathered at Tropicana Field to cheer on the Tampa Bay Rays and raise awareness of ichthyosis and FIRST. The Rotondo family hosted the game on Saturday, June 13 in honor of their daughter, Mary Elizabeth who is affected with ichthyosis. Thank you Rotondo family for organizing this fun event! 

Washington Nationals

It was a beautiful night for baseball for the FIRST Night Out with the Washington Nationals on Wednesday, June 24. The Beard family invited friends to support FIRST and honor their son, Blake who has loricrine keratoderma. Through the generosity of the entire Beard family and friends, the game raised over $1,000 for FIRST!

Minnesota Twins

The Kimmelman family hosted a FIRST Night Out with the Minnesota Twins on Sunda, May 31.  Longtime supporters of FIRST, Sarah, who has EI, Jonathan, and their son Alex,who has CIE, watched as the Twins played the Toronto Blue Jays.  The Sinclair family, whose daughter Genevieve has EI, also joined in on the fun.

Boston Red Sox

Labor Day Weekend is the perfect time for barbeques, picnics and baseball! The Robinson family, whose daughter Sienna is affected with epidermolytic ichthyosis, organized the FIRST Day Out with the Boston Red Sox on Sunday, September 6. Several FIRST families and friends watched as the Red Sox took on the Philadelphia Phillies.  Joining in on the fun was the Hamills whose daughter Lauren is affected with harlequin ichthyosis. The day turned out beautifully and was capped off with an exciting win from the Red Sox. Through ticket sales and donations, the event raised $1,585. Many thanks to the Robinson Family for their passion and continued support, and for everyone who came out to raise awareness for a very worthy cause.

Cleveland Indians

Family and friends of Emma Klima, who was born with epidermolytic ichthyosis,  got together for the fourth time to support FIRST at Progressive Field to watch the Cleveland Indians take on the Los Angeles on Friday, August 28!  Not only were attendees treated to Dollar Dog Night and Fireworks, but the Indians also won the game! Adding to the victories, the event raised $420 for FIRST. Thank to you all the supporters who came out to cheer on the Indians and Emma!

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