FIRST is a national non-profit organization connected to its members and families by the special skin and unique management needs of individuals affected with ichthyosis and related skin types.
Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Governed by a Board of Directors and guided by a Medical & Scientific Advisory Board, FIRST provides accurate and timely information to meet the medical, social, and educational needs of our community.
Recruitment Underway for Sjogren-Larsson Syndrome Study
June 12, 2013 - A research study on SLS to gather clinical information about its natural history and search for biomarkers (tests) that can be used to monitor future therapy. Read More
June 12, 2013 - A research study on SLS to gather clinical information about its natural history and search for biomarkers (tests) that can be used to monitor future therapy. Read More
Tommy's Stadium Tour
April 8, 2013 - Tommy, MLB's Biggest Little Fan is touring ballparks across the United States! Read More
April 8, 2013 - Tommy, MLB's Biggest Little Fan is touring ballparks across the United States! Read More
Where Have All the Cowboys Gone?
June 14, 2013 - DALLAS PATIENT SUPPORT FORUM - Anticipation filled the room as our esteemed panel of speakers took center-stage and offered a riveting summary of the latest genetic research. Read More
June 14, 2013 - DALLAS PATIENT SUPPORT FORUM - Anticipation filled the room as our esteemed panel of speakers took center-stage and offered a riveting summary of the latest genetic research. Read More
Patient Support Forum will be held in Cincinnati
June 11, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
June 11, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
Bathing Completes the Shedding Process…naturally.
June 10, 2013 - Bathing may be even more important to the shedding process, than previously considered. Read More
June 10, 2013 - Bathing may be even more important to the shedding process, than previously considered. Read More
FIRST Announces 2013 UFIRST Scholar Recipients
June 7, 2013 - FIRST is proud to announce the nine 2013 scholarship recipients of the UFIRST Scholars Award. Read More
June 7, 2013 - FIRST is proud to announce the nine 2013 scholarship recipients of the UFIRST Scholars Award. Read More
Patient Support Forum Heads to New Jersey
June 6, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
June 6, 2013 - This one-day meeting includes a medical discussion, research update, and product sharing. Read More
