• Research
  • RAISE
  • Tele-Ichthyosis
  • Meet our Families
  • What is Ichthyosis

Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.

Upcoming Events & Latest News
UFIRST Scholars Program 2015 Applications Now Available!
February 1, 2015 - An opportunity for students affected with a form of ichthyosis or a related skin type to achieve their highest educational potential. Applications are now available. Read More
UFIRST Scholars Program 2015 Applications Now Available!
Patient Support Forums are Taking Place Throughout the Country!
March 19, 2015 - Come out for a day of networking with other families affected by ichthyosis. Meet other families in your area and learn how to build a stronger network in the ichthyosis community. Read More
Patient Support Forums are Taking Place Throughout the Country!
Aldeyra Therapeutics Opens Phase II of Clinical Trial
March 19, 2015 - The study is being conducted at the University of Nebraska Medical Center with FIRST MSAB member, Dr. Bill Rizzo as the Principle Investigator. Read More
Aldeyra Therapeutics Opens Phase II of Clinical Trial
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
February 1, 2015 - The fight against ichthyosis is not only medical but also financial. Daily treatment routines can be complicated by the ongoing costs of medical supplies and other aids. Read More
Diya & Aliya's Friends Skin Care Fund is now accepting applications!
FIRST Launches New National Fundraising Campaign - RAISE!
February 19, 2015 - RAISE is FIRST's new online national fundraising campaign encouraging people from all across the country to join together and raise awareness, funds, and hope. Read More
FIRST Launches New National Fundraising Campaign - RAISE!
Boston Children's Hospital Conducting a Harlequin Ichthyosis Study
February 9, 2015 - Boston Children's Hospital is conducting a medical records study of people with harlequin ichthyosis. Read More
Boston Children's Hospital Conducting a Harlequin Ichthyosis Study